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International Guillain-Barré Syndrome Outcome Study: protocol of a prospective observational cohort study on clinical and biological predictors of disease course and outcome in Guillain-Barré syndrome

dc.creatorJacobs B.C., van den Berg B., Verboon C., Chavada G., Cornblath D.R., Gorson K.C., Harbo T., Hartung H.-P., Hughes R.A.C., Kusunoki S., van Doorn P.A., Willison H.J., the IGOS Consortium, Jacobs B.C., Hughes R.A.C., Cornblath D.R., Gorson K.C., Hartung H.P., Kusunoki S., van Doorn P.A., Willison H.J., van Woerkom M., van den Berg B., Verboon C., Roodbol J., Jacobs B.C., Reisin R.C., Reddel S.W., Islam Z., Islam B., Mohammad Q.D., van den Bergh P., Feasby T.E., Wang Y.Z., Harbo T., Péréon Y., Hartung H.P., Lehmann H.C., Dardiotis E., Nobile-Orazio E., Kusunoki S., Shahrizaila N., Jacobs B.C., van den Berg B., Verboon C., Bateman K., Illa I., Querol L.A., Hsieh S.T., Willison H.J., Chavada G., Davidson A., Gorson K.C., Addington J.M., Ajroud-Driss S., Andersen H., Antonini G., Attarian S., Badrising U., Barroso F.A., Benedetti L., Beronio A., Bianco M., Binda D., Briani C., Bürmann J., Bella I.R., Bertorini T.E., Bhavaraju-Sanka R., Brannagan T.H., Busby M., Butterworth S., Campagnolo M., Casasnovas C., Cavaletti G., Chao C.S., Chen S., Chetty S., Claeys K.G., Cohen J.A., Conti M.E., Cosgrove J.S., Dalakas M.C., Dimachkie M.M., Dillmann U., Domínguez González C., Doppler K., Dornonville de la Cour C., Echaniz-Laguna A., Eftimov F., Faber C.G., Fazio R., Fokke C., Fujioka T., Fulgenzi E.A., Galassi G., Garcia T., Garnero M., Garssen M.P.J., Gijsbers C.J., Gilchrist J.M., Gilhuis H.J., Goldstein J.M., Goyal N., Granit V., Grapperon A., Gutiérrez Gutiérrez G., Gutmann L., Hadden R.D.M., Holbech J.V., Holt J.K.L., Homedes Pedret C., Htut M., Jellema K., Jericó Pascual I., Kaida K., Karafiath S., Katzberg H.D., Kiers L., Kieseier B.C., Kimpinski K., Kleyweg R.P., Kokubun N., Kolb N.A., Kuitwaard K., Kuwabara S., Kwan J.Y., Ladha S.S., Landschoff Lassen L., Lawson V., Ledingham D., Léon Cejas L., Luciano C.A., Lucy S.T., Lunn M.P.T., Magot A., Manji H., Marchesoni C., Marfia G.A.M., Márquez Infante C., Martinez Hernandez E., Mataluni G., Mattiazi M., McDermott C.J., Meekins G.D., Miller J., Monges M.S., Montero M.C.J., Morís de la Tassa G., Nascimbene C., Neumann C., Nowak R.J., Orizaola Balaguer P., Osei-Bonsu M., Pan E.B.L., Pardo Fernandez J., Pasnoor M., Pulley M.T., Rajabally Y.A., Rinaldi S., Ritter C., Roberts R.C., Rojas-Marcos I., Rudnicki S.A., Sachs G.M., Samijn J.P.A., Santoro L., Saperstein D.S., Savransky A., Schneider H., Schenone A., Sedano Tous M.J., Sekiguchi Y., Sheikh K.A., Silvestri N.J., Sindrup S.H., Sommer C.L., Stein B., Stino A.M., Spyropoulos A., Srinivasan J., Suzuki H., Taylor S.W., Tankisi H., Tigner D., Twydell P.T., Valzania F., van Damme P., van der Kooi A.J., van Dijk G.W., van der Ree T., van Koningsveld R., Varrato J.D., Vermeij F.H., Verschuuren J.J.G.M., Visser L.H., Vytopil M.V., Waheed W., Wilken M., Wilkerson C., Wirtz P.W., Yamagishi Y., Yiu E.M., Zhou L., Zivkovic S.en
dc.date.accessioned2023-01-31T08:28:43Z
dc.date.available2023-01-31T08:28:43Z
dc.date.issued2017
dc.identifier10.1111/jns.12209
dc.identifier.issn10859489
dc.identifier.urihttp://hdl.handle.net/11615/74071
dc.description.abstractGuillain-Barré syndrome (GBS) is an acute polyradiculoneuropathy with a highly variable clinical presentation, course, and outcome. The factors that determine the clinical variation of GBS are poorly understood which complicates the care and treatment of individual patients. The protocol of the ongoing International GBS Outcome Study (IGOS), a prospective, observational, multicenter cohort study that aims to identify the clinical and biological determinants and predictors of disease onset, subtype, course and outcome of GBS is presented here. Patients fulfilling the diagnostic criteria for GBS, regardless of age, disease severity, variant forms, or treatment, can participate if included within 2 weeks after onset of weakness. Information about demography, preceding infections, clinical features, diagnostic findings, treatment, course, and outcome is collected. In addition, cerebrospinal fluid and serial blood samples for serum and DNA is collected at standard time points. The original aim was to include at least 1,000 patients with a follow-up of 1–3 years. Data are collected via a web-based data entry system and stored anonymously. IGOS started in May 2012 and by January 2017 included more than 1,400 participants from 143 active centers in 19 countries across 5 continents. The IGOS data/biobank is available for research projects conducted by expertise groups focusing on specific topics including epidemiology, diagnostic criteria, clinimetrics, electrophysiology, antecedent events, antibodies, genetics, prognostic modeling, treatment effects, and long-term outcome of GBS. The IGOS will help to standardize the international collection of data and biosamples for future research of GBS. © 2017 Peripheral Nerve Societyen
dc.language.isoenen
dc.sourceJournal of the Peripheral Nervous Systemen
dc.source.urihttps://www.scopus.com/inward/record.uri?eid=2-s2.0-85020274741&doi=10.1111%2fjns.12209&partnerID=40&md5=3bcbcb1272010b750bfb9f6bf069524d
dc.subjectDNAen
dc.subjectadulten
dc.subjectArticleen
dc.subjectblood samplingen
dc.subjectcerebrospinal fluiden
dc.subjectchilden
dc.subjectclinical featureen
dc.subjectclinical protocolen
dc.subjectcohort analysisen
dc.subjectdemographyen
dc.subjectdisease courseen
dc.subjectdisease severityen
dc.subjectelectrophysiologyen
dc.subjectenvironmental factoren
dc.subjectfollow upen
dc.subjectGuillain Barre syndromeen
dc.subjecthumanen
dc.subjectinfectionen
dc.subjectmajor clinical studyen
dc.subjectobservational studyen
dc.subjectoutcome assessmenten
dc.subjectpriority journalen
dc.subjectprospective studyen
dc.subjectdisease exacerbationen
dc.subjectfemaleen
dc.subjectGuillain Barre syndromeen
dc.subjectinternational cooperationen
dc.subjectmaleen
dc.subjectmetabolismen
dc.subjectoutcome assessmenten
dc.subjectpathophysiologyen
dc.subjectCohort Studiesen
dc.subjectDisease Progressionen
dc.subjectFemaleen
dc.subjectGuillain-Barre Syndromeen
dc.subjectHumansen
dc.subjectInternational Cooperationen
dc.subjectMaleen
dc.subjectObservational Studies as Topicen
dc.subjectOutcome Assessment (Health Care)en
dc.subjectBlackwell Publishing Inc.en
dc.titleInternational Guillain-Barré Syndrome Outcome Study: protocol of a prospective observational cohort study on clinical and biological predictors of disease course and outcome in Guillain-Barré syndromeen
dc.typejournalArticleen


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